APSU Research Projects

• FASD Australian registry

• Paediatricians Caring for Children with Rare Diseases: Survey of knowledge, practice and future educational needs.

• ARC LINKAGE GRANT

• Experience of transition to adult care for young people with neuromuscular disorderS

• FAMILY SURVEY

• Female Genital Mutilation (FGM) Project

• National Survey of Health Services for Children Living with Rare Diseases