Past Studies
22q11.2 deletion syndrome (JUL 2015 - JUL 2017)
Protocol: 22q11.2
Case Report Form: 22q11.2
Clinical Guidelines: Multisystem features of 22q11.2
Acute Rheumatic Fever (ARF) (Oct 2007 - Dec 2010)
Protocol ARF
Questionnaire ARF
Anaphylaxis following food ingestion (Jul 2002 - Dec 2003)
Protocol ANA
Questionnaire
Arthrogyposis Multiplex Congenita (AMC) (Jan 1996 - Dec 1998)
Final Report
Protocol AMC
Questionnaire AMC
CHARGE association (Jan 2000 - Dec 2002)
Protocol Charge
Questionnaire
Childhood Conversion disorder (Jan 2002 - Dec 2003)
Protocol Conv
Questionnaire
Childhood Dementia (May 1993 - Jun 1995)
Final Report
Protocol Dementia
Questionnaire
CHILDhood Interstitial Lung disease (chILD) (SEP 2014 - APR 2017)
Protocol chILD
Case Report Form chILD
Online chILD Case Report Form
Chronic Fatigue Syndrome (Apr 2015 - Apr 2016)
Protocol CFS
Case Report Form CFS
Parent/Carer Information Sheet CFS
Complementary and Alternative Medicines (CAM) (Jan 2001 - Dec 2003)
Protocol CAM
Questionnaire CAM
Congenital adrenal hyperplasia (CAH) (Aug 1995 - Dec 1997)
Final Report
Protocol CAHPROT
Questionnaire (Form A)
Questionnaire (Form B)
Congenital and neonatal varicella (Mar 1995 - Dec 1997)
Final Report
Protocol
Questionnaire
CRYOPRYIN ASSOCIATED PERIODIC SYNDROME (CAPS) (JuL 2011)
Protocol
Questionnaire
Drowning and near drowning (May 1993 - Dec 1996)
Final Report
Protocol Drowning
Questionnaire
Eosinophilic Oesophagitis (EoE) (JUL 2013 - JUN 2014)
Protocol EoE
Case Report Form EoE
EoE information sheet
Early onset eating disorder (EOED) (jul 2002 - jun 2005)
Protocol EOED
Questionnaire
Early onset eating disorder 2 (EOED 2) (Feb 2016 - mar 2018)
Protocol: EOED
Case Report Form: EOED
Extrahepatic biliary atresia (May 1993 - Dec 1996)
Final Report
Protocol
Questionnaire
Fetal Alcohol Syndrome (FAS) (JAN 2001 - dEC 2004)
Protocol
Questionnaire
Food Protein Induced Enterocolitis Syndrome (FPIES) (JAN 2012 - APR 2014)
Protocol
Questionnaire
Parent Information Sheet
Haemoglobinopathies (HAEM) (JAN 2004 - MAR 2006)
Protocol HAEM
Questionnaire
Haemolytic Uraemic syndrome (HUS) (JUL 1994 - DEC 2001)
Protocol
Questionnaire HUS
Hepatitis C virus infection (HCV) (Jan 2003 - Jun 2008)
Protocol HCV
Questionnaire HCV
Hirschprung disease (Jan 1997 - Dec 2000)
Final Report
Protocol
Questionnaire
Hyperinsulinaemic hypoglycaemia of infancy (HI) (JAN 2005 - APR 2006)
Protocol HI
Questionnaire HI
Intussusception (IS) (May 2007 - May 2010)
Protocol IS
Questionnaire IS
Invasive haemophilus influenzae infection (Jan 1998 - Dec 2000)
Final Report
Protocol Hib
Questionnaire
Kawasaki disease (May 1993 - Jun 1995)
Final Report
Protocol KD
Questionnaire KD
MICROCEPHALY IN CHILDREN AGED < 12 MONTHS (MCPH) (JUN 2016 - JUL 2018)
Protocol: Microcephaly
Questionnaire: Microcephaly
Munchausen by proxy syndrome (Jan 2000 - Dec 2003)
Protocol
Questionnaire
Neonatal/Infant Group B Streptococcal Sepsis (GBS) (Jul 2005 - Jun 2008)
Protocol GBS
Questionnaire GBS
Nephrotic syndrome (Jul 1998 - Jun 2000)
Final Report
Protocol
Questionnaire
Neuromuscular Disorders of Childhood (NMD) (Jan 2007 - Dec 2009)
Protocol NMD
Questionnaire NMD
Non Tuberculosis Mycobacterial Infection (Jul 2004 - Sept 2007)
Protocol
Questionnaire NTM
paediatrician experience with management of sudden unexpected death in infancy (SUDI)
** A one off survey of NSW Paediatrician Experience **
Protocol: SUDI
Printable Case Report Form: SUDI Part 1
Printable Case Report Form: SUDI Part 2 (Anonymous)
Pertussis (Jan 2001 - Dec 2001)
Protocol
Questionnaire
Prader Willi syndrome (Jan 1998 - Dec 2000)
Final Report
Protocol
Questionnaire
Primary Immunodeficiency disease (PID) (Jan 1997 - Dec 1999)
Final Report
Protocol
Questionnaire
Serious Seat Belt Injuries (SSI) (Jan 2006 - Dec 2007)
Abdominal Injuries Severity Scale
Protocol SSI
Questionnaire SSI
Severe Combined Immunodeficiency syndrome (SCID) (May 1995 - Dec 2001)
Protocol SCIDS
Questionnaire
Severe Complications of Influenza (Sep 2007)
Protocol and Questionnaire 2007
Severe Complications of Influenza (Jul 08 - Sep 08)
Protocol and Questionnaire 2008
Severe Complications of Influenza (May 09 - SEP 09)
Protocol and Questionnaire 2009
Severe Complications of Influenza (JuL 10 - OCT 10)
Protocol and Questionnaire 2010
Severe Complications of Influenza (JUN 11 - SEP 11)
Protocol and Questionnaire 2011
Severe Complications of Influenza (JuL 12 - SEP 12)
Protocol and Questionnaire 2012
Severe Complications of Influenza (JUL 13 - SEP 13)
Protocol and Questionnaire 2013
Severe Complications of Influenza (JuL 14 - SEP 14)
Protocol and Questionnaire 2014
Severe Complications of Influenza (JUL 15 - SEP 15)
Protocol and Questionnaire 2015
Severe Complications of Influenza (JuN 16 - SEP 16)
Protocol and Questionnaire 2016
Severe Complications of Influenza (JuN 17 - SEP 17)
Protocol and Questionnaire 2017
Severe Complications of Influenza (JuN 18 - SEP 18)
Protocol and Questionnaire 2018
SEVERE NEONATAL HYPERBILIRUBINAEMIA OR EXCHANGE TRANSFUSION (SEVERE JAUNDICE - SNH) (APR 2010 - MAR 2013)
Protocol SNH
Questionnaire SNH
SNH Public Information Sheet
Simple Vitamin D Deficiency rickets (VitD) (Jan 2006 - Aug 2007)
Protocol VitD
Questionnaire VitD
Subacute sclerosing panencephalitis (SSPE) (JAN 1995 - DEC 1998)
Final Report
Protocol
Questionnaire SSPE
SUBDURAL HAEMATOMA AND EFFUSION IN CHILDREN < 2YRS (SDH) (JUL 2010 - DEC 2012)
Protocol SDH
Quetsionnaire SDH
Questionnaire Follow Up 12 Months
SUDDEN UNEXPECTED EARLY NEONATAL DEATH OR COLLAPSE (SUEND) (JAN 2012 - DEC 2014)
SUEND Protocol
SUEND Case Report Form
Systemic lupus erythematosus (SLE) (OCT 2009 - DEC 2011)
SLE Protocol
SLE Questionnaire
SLE 12 Month Follow Up
SLE Public Information Sheet
VARICELLA COMPLICATIONS REQUIRING HOSPITALIZATION (May 06 - Dec 13)
Protocol
Questionnaire
VITAMIN K DEFICIENCY BLEEDING (HDN) (mAY 1993 - DEC 2017)
Protocol: HDN
Questionnaire: HDN
