ARC Linkage Grant

This three year ARC Linkage Grant, commencing in the second half of 2011, aims to research the psychosocial and economic impacts of rare diseases on Australian children, families and health professionals.

Project Summary 

Rare Childhood diseases have enormous impacts on children, families, health services, and health professionals. This project will enable Australia to lead the international research effort by using a coordinated approach to study the impacts of rare diseases in order to improve psychosocial, health and economic outcomes for children and families.


  • Dr Yvonne A Zurynski, Prof Elizabeth J Elliott, A/Prof Helen M Leonard, Prof John Christodoulou.

Partner/Collaborating Organisations

  • Royal Australasian College of Physicians, Smile Foundation Limited, Steve Waugh Foundation, The Association of Genetic Support Australasia, The Children's Hospital Sydney.

Administering Organisation

  • The University Of Sydney