About

About the APSU The APSU was established in 1993 by Director, Professor Elizabeth Elliott. The APSU facilitates active surveillance of uncommon childhood diseases, complications of common diseases or adverse effects...

Current Studies

Current Studies X-LINKED HYPOPHOSPHATAEMIC RICKETS (xlh) PREVALENCE STUDY ** A one off survey ** Protocol: X-Linked Hypophosphataemic Rickets (XLH) Prevalence Online Case Report Form:  X-Linked Hypophosphataemic Rickets (XLH) Prevalence Printable Case Report Form: ...

Research

APSU Research Projects Paediatricians Caring for Children with Rare Diseases: Survey of knowledge, practice and future educational needs./research/survey-paediatricians-caring-for-children-with-rare-diseases-survey-of-knowledge-practice-and-future-educational-needs./ ARC LINKAGE GRANT/research/arcan/ Experience of transition to adult care...

Experience of Transition

Experience of transition to adult care for young people with neuromuscular disorders *What is the study about?* Young people with neuromuscular disorders are transitioned to adult medical and allied health...

APSU News

Read all the latest news here, or in our annual archives!   NEW PUBLICATIONS Epidemiology of paediatric chronic fatigue syndrome in Australia Recognition, treatment, and sequelae of congenital cytomegalovirus in...

Annual Reports

*Annual Reports*  Teutsch SM, Nunez CA, Morris A, McGregor S, King J, Brotherton JM, Novakovic D, Booy R, Jones CA, Rawlinson W, Thorley BR. *Australian Paediatric Surveillance Unit (APSU)...

Annual Reports

*Annual Reports*  Teutsch SM, Nunez CA, Morris A, McGregor S, King J, Brotherton JM, Novakovic D, Booy R, Jones CA, Rawlinson W, Thorley BR. *Australian Paediatric Surveillance Unit (APSU)...

Publications

*Publications Library*   Acute Flaccid Paralysis ORIGINAL ARTICLES Desai S, Smith T, Thorley BR, Grenier D, Dickson N, Altpeter E, SPSU Committee, Sabbe M, Elliott E, Zurynski Y.  Performance of acute flaccid...

Newsletters

APSU Newsletters "Rare Kids" Current contributors are kept informed on key issues through the production of our newsletter “Rare Kids”.  The newsletter provides information on new surveillance studies, reporting issues, key events and...

Media

APSU Media 2011 Taor A,Use of complementary and alternative medicines, in favour of conventional medicines, can have fatal consequences in children, Australian researchers warn.[http://www.theaustralian.com.au/news/health-science/good-week-for-women-who-wait-a-number-of-years-before-having-a-second-child/story-e6frg8y6-1225991979785]The Australian, Pulse, January 22, 2011 Gleeson R, Babies risk...

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