Family Survey

Family Survey  Living with Rare Disease: The Impacts on your Child and your Family A big “Thank You!!!” to all families who completed the survey so far. Your voice has been...

Resources

Resources  

Resources

Resources for Students & Trainees Writing a Systematic Literature Review

Parents Portal

*Parents Portal: *Resources for Parents & Families INFORMATION FOR PARENTS   Cytomegalovirus (CMV) Infection Children's Interstitial Lung Disease (chILD) Non-Cystic Fibrosis Bronchiectasis   Picture1               LINKS TO...

APSU Contributors

APSU Contributors Please click below to access the new contributor contact permission form. Printable Contact Permission Form - please print, complete and return to the APSU by scanning and emailing to: SCHN-APSU@health.nsw.gov.au[mailto:schn-apsu@health.nsw.gov.au] or...

FASD Group

FASD Group STAFF *Dr Tracey Tsang, Senior Research Fellow, BAppSc (Hons. Univ. Medal), PhD* - Tracey is a Senior Research Fellow with experience in adolescent health research areas including FASD,...

Recent Publications

*Recent Publications*   *Acute Flaccid Paralysis* ORIGINAL ARTICLES Desai S, Smith T, Thorley BR, Grenier D, Dickson N, Altpeter E, SPSU Committee, Sabbe M, Elliott E, Zurynski Y. *Performance of acute...

Studies

STUDIES *CONDITIONS UNDER SURVEILLANCE* Since 1993 the APSU has monitored 63 rare childhood conditions that include congenital/genetic disorders, infectious/vaccine preventable studies, mental health issues and other injuries. Protocol and Questionnaires for current...

Survey - Paediatricians Caring for Children with Rare Diseases: Survey of knowledge, practice and future educational needs.

Survey - Paediatricians Caring for Children with Rare Diseases: Survey of knowledge, practice and future educational needs. What is the survey about? This survey aims to describe the educational and...

FGM Conference

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