General Publications

Original Articles

Elliott EJ, Zurynski YA
Rare diseases are a ‘common’ problem for clinicians
Australian family physician. 2015 Sep;44(9):630.

Payne J. Antoine H, France K, McKenzie A, Henley N, Bartu A, Elliott E, and Bower C. 
Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation
Health Research Policy and Systems 2011; 9(18).

Payne J, France K, Henley N, D’Antoine H, Bartu A, Elliott E. 
Researchers’ experience with project management in health and medical research: Results from a post-project review
BMC Public Health 2011; 11:424.

O'Leary C, Nassar N, Kurinczuk J, de Klerk N, Geelhoed E, Elliott E, Bower C. 
Prenatal alcohol exposure and risk of birth defects
Pediatrics 2010; 126(4): e843-850.

France K, Henley N, Payne J, D'Antoine H, Bartu A, O'Leary C, Elliott E, Bower C.
Health professionals addressing alcohol use with pregnant women in Western Australia: Barriers and strategies for communication
Substance Use and Misuse. 2010; 45(10):1474-1490.

Elliott, EJ
Editorial Commentary: pregnancy and pandemic flu
Clinical Infectious Diseases 2010; 50(5):691-692.

Bower C, Lester-Smith D, Elliott E.
Congenital anomalies — why bother?
Medical Journal of Australia 2010;192(6): 300-301.

He S, Zurynski Y, Elliott E.
Evaluation of a national resource to identify and study rare diseases: the Australian Paediatric Surveillance Unit
Journal of Paediatrics and Child Health 2009; 45(9):498-504. 

He S, Zurynski Y, Elliott E.
What do paediatricians think of the Australian Paediatric Surveillance Unit?
Journal of Paediatrics and Child Health 2010; 46(7-8):412-418.

Kesson AM; Benwell N; Elliott EJ.
Norovirus diarrhoeal disease in infants and children
Medical Journal of Australia 2010; 192(2):108-109. 

Grenier D, Lynn R, Zurynski Y on behalf of all national paediatric surveillance unit investigators.
Public health impacts of paediatric surveillance units
Paediatrics and Child Health 2009; 14(8):499-500.

Tofts LJ, Elliott EJ, Munns C, Pacey V, Sillence DO.
The differential diagonsis of children with joint hypermobility:a review of the literature
Pediatric Rheumatology Online Journal 2009; 7:1.

Iwansenko JM, Scott GM, Rawlinson WD, Keogh A, Mitchell D, Chou S.
Successful valganciclovir infection in the presence of UL97 mutation N597D
Journal of Medical Virology 2009; 81(3):507-510.

Fremantle E, Zurynski Y, Mahajan D, D'Antoine H, Elliott E.
Indigenous Child Health: urgent need for improved data to underpin better health outcomes
Medical Journal of Australia 2008; 188(8): 588-592

  • Methods and Data Extraction (Appendix 1)
  • Supplementary Data Tables (Appendix 2)

Jaffe A, Zurynski Y, Beville L, Elliott E.
Call for a national plan for rare diseases
Journal of Paediatrics and Child Health 2009: 46(1-2): 2-4.

Zurynski Y, Reeve K, leonard H, Elliott E.
Rare diseases: how should we respond?
Archives of Disease in Childhood 2008; 93(12): 1071-1074.

Grenier D, Elliott EJ, Zurynski Y, Pereira RR, Preece M, Lynn R, von Kries R, Zimmermann H, Dickson NP, Virella D. 
Beyond counting numbers; Public health impacts of national paediatric surveillance units studies
Archives of  Childhood Disease 2007; 92(6): 527-33. Epub 2006 Dec 11 2006.

Hale K, Rampersad N, Elliott E.
Diarrhea with encephalopathy: A case report
Journal of Pediatric Infectious Diseases. 2007 Dec;2(04):237-40.

Ramjan KA, Willliams AJ, Elliott EJ, Isbister GK.
Red as a beet and blind as a bat. Anticholinergic delirium in adolescents; lessons for the paediatrician 
Journal of Paediatrics and Child Health 2007; 43(11):779-780.

Zurynski Y, Peadon E, Bower C, Elliott E.
Impacts of national surveillance for uncommon conditions in childhood 
Journal of Paediatrics and Child Health 2007; 43: 724-31.

Zurynski YA, Reeve KN, Elliott EJ.
International conferences on rare diseases: initiatives in commitment, patient care and connections (Letter)
Medical Journal of Australia 2007; 19:187(10): 597

Shorter D, Makone I, Elliott EJ.
Fever and urticaria in an African refugee
Journal of Paediatrics and Child Health  2006; 42: 731-736

Zurynski Y ,Cronin P, Elliott EJ.
Communicable and vaccine-preventable conditions under surveillance by the APSU: 2005 update
Communicable Disease Intelligence 2006; 30: 341-344

Elliott E, Rose D.
Reporting of communicable disease conditions under surveillance by the APSU, 1 January to 30 June 2004
Communicable Disease Intelligence 2003; 28(4): 529-531

Elliott E, Rose D.
Reporting of communicable disease conditions under surveillance by the APSU, 1 January to 30 June 2003
Communicable Disease Intelligence 2003; 27(4): 524-5

Morris A, Ridley G, Elliott EJ.
The Australian Paediatric Surveillance Unit: progress report
Journal of Paediatrics and Child Health 2002; 38(1): 8-15

Gazarian M, Williams K, Elliott E, Chant K, Longbottom H, Mellis C, Nolan T, Oates RK, Ruben A.
Evaluation of a national surveillance unit
Archives of Childhood Disease 1999; 21: 20-27


PUBLISHED ABSTRACTS

Zurynski Y, Elliott E.
The Importance of engaging with patient support groups: education, research, and influencing national policy on rare diseases
Swiss Medical Weekly 2011; 141(sup. 187): 13.

Zurynski Y, Lester-Smith D, Booy R, Festa M, Kesson A, Elliott E.
Influenza H1N1 2009 pandemic: severe complications and deaths in children <15 years.
Journal of Paediatrics and Child Health 2010; 46(2):056.

Zurynski Y.
Supporting families and clinicians to manage rare childhood diseases: A view from Europe
Journal of Paediatrics and Child Health. 2010; 46(2): P22.

Peadon E, Payne J, Henley N, D'Antoine H, Bartu A, Bower C, Elliott E.
How do women want to be informed about alcohol use in pregnancy?
Journal of Paediatrics and Child Health. 2010; 46(2): P12.

He S, Zurynski Y, Elliott E.
Second evaluation of The Australian Paediatric Surveillance Unit: An excellent report card
Journal of Paediatrics and Child Health 2008; 44(9): A16.

Mahajan D, Fremantle E, Zurynski Y, D' Antoine H, Elliott EJ.
Indigenous child health: urgent need for improved data to underpin better health outcomes 
Journal of Paediatrics and Child Health 2008; 44(9): A23.

Pym M, Adams J, Booy R, Buttery J, Elia S, Elliott E, Gold M, Health C, Marshall H, McIntyre P, Phillips A, Rhind L, Richmond P, Royle J, Wall K, Wood N and Zurynski Y.
The development and trial of paediatric active enhanced disease surveillance (PAEDS): A new surveillance mechanism for Australia
Journal of Paediatrics and Child Health 2008; 44(9): A16.

Zurynski Y, Elliott E.
So you want to do an APSU Study ? RACP Congress Melbourne, May 2007.
Journal of Paediatrics and Child Health (in Press)

Elliott EJ, Bower C, Zurynski YA, Cronin P.
Public health impacts of rare disease surveillance by the APSU
Journal of Paediatrics and Child Health 42[11], A9. 2006.

Zurynski Y, Elliott EJ, Bower C, Cronin P.
Public health impacts of rare disease surveillance by the Australian Paediatric Surveillance Unit. 15th Annual meeting of the Australasian Epidemiological Association, 17th-19th September, 2006
Australasian Epidemiologist 2006; 13[3], 122.

Elliott EJ, Zurynski Y.
Active surveillance of rare conditions of childhood: a collaborative effort
Australasian Epidemiologist 2005; 12[3], 56.

Elliott EJ, Rose D.
Public health impact of studies conducted through the APSU.
Portuguese Paediatric Surveillance Unit Bulletin 5[1], 11. 2004


REPORTS

Zurynski Y, Deverell M, Brodie L, Elliott EJ on behalf of all Forum participants and the organising committee. 
Forum on transition to adult health services: Experiences of young people living with rare diseases

Australian Paediatric Surveillance Unit and the National Centre for Immunisation Research and Surveillance on behalf of collaborating centres, Royal Children's Hospital, Melbourne, Women's and Children's Hospitals Australasia, Adelaide, The Children's Hospital at Westmead, Sydney, Princess Margaret Hospital, Perth. 

PAEDS Future Options Report, 2009, 31 March. 

Elliott E, Zurynski Y, Pym M, McKay N, McIntyre P, Booy R, Wood N, Richmond R, Rhind L, Royle J, Buttery J, Elia S, Gold M,
Marshall H & Heath C. 
Paediatric Active Enhanced Disease Surveillance Project Pilot 12 month Report. September 2008.

Srikanthan S, Zurynski Y, Elliott E.
Australian Paediatric Surveillance Unit: Celebrating 15 years of surveillance.
Australian Paediatric Surveillance unit, Sydney 2008; ISBN: 978-0-646-49063-2.


International Network of Pediatric Surveillance Units (INoPSU)

ORIGINAL ARTICLES

Elliott E, Nichol A, Lynn R, Marchessault V, Hirasing R, Ridley G on behalf of the secretariat and members of the International Network of Paediatric Surveillance Units.
Rare disease surveillance: An international perspective
Paediatrics and Child Health 2001; 6(5): 251-260.


PUBLISHED REPORTS

Lynn R, Ridley G, Elliott E, Medaglia A. (Eds).
International Network of Paediatric Surveillance Units First Progress Report 1999-2002.
International Network of Paediatric Surveillance Units. London. ISBN 1900954 90 7. 2003: 1-30


PUBLISHED ABSTRACTS

Pereira-Da-Silva L, Von Fries R, Rose D, Elliott E on behalf of the members of the INOPSU.
Acknowledging contribution to surveillance studies 
Archives of Disease in Childhood 2005; 90: 768

Elliott EJ, Lynn R, on behalf of INOPSU Secretariat MAAU.
The International Network of Paediatric Surveillance Units (INOPSU).
Portuguese Paediatric Surveillance Unit Bulletin 5[1], 14. 2004